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Can you believe it’s August already? It seems like the year is rushing past.
This month sees a brand new educational video added to the HFA library. ‘Haemophilia inheritance in males: the short answer’ is a quick video aimed at teenage males with haemophilia who want to learn more about how the gene change is passed on.
We also feature a pair of reports from WFH 2024 World Congress. Jaime Chase shares her perspective on the Body Art presentation – all about tattoos, piercings and bleeding disorders. While Lara Nicholson reports on ‘Women: Caregivers to patients to advocates’.
Meanwhile the team is hard at work preparing for Bleeding Disorders Awareness Month in October. We’ve started receiving promo items to the office and (spoilers) we think you’re going to love them.
What’s been popular on socials? We posted a great little diagram showing the evolution of haemophilia treatments. Check it out on Facebook, Instagram or LinkedIn.
As always, thanks for being part of our community, and happy reading!
Haemophilia inheritance in males: the short answer
If you were born male with haemophilia, will your children have haemophilia too?
In our new video for teenage males, ‘Haemophilia inheritance in males: the short answer’, we explore how haemophilia is inherited, and why fathers with haemophilia pass the gene change onto their daughters – but not their sons.
Women: caregivers to patients to advocates
From caregiver, to patient, to advocate. It’s a path that many women tread, especially those with a bleeding disorder. But where do you start?
At WFH World Congress 2024, international speakers (including HFA’s Suzanne O’Callaghan) came together to explore how women with bleeding disorders to go from caregiver to patient, and from patient to advocate. And Suzanne shared insightful contributions from some of our Australian women leaders. Lara Nicholson shares her report on the session in National Haemophilia.
Order your promo items for BDAM!
Bleeding Disorders Awareness Month is coming up fast! Are you planning an event this October to help raise awareness? Order your promo items now to ensure you don’t miss out.
We have toy cars, balloons, pens, kids activity sheets, stickers, posters, temporary tattoos and more available to support your event and help you raise awareness.
Body art – tattoos and piercings
“Think Before You Ink” was the motto shared by Scott in his presentation on Body art – tattoos and piercings at the WFH 2024 World Congress in April.
Jaime Chase shares her perspective on the session in the latest edition of National Haemophilia.
Other news
Research opportunity: VWD 360 Study
Do you have VWD? Are you interested in contributing to an international research study about what it is like to live with VWD? Haemnet’s VWD 360 study aims to gain a greater understanding of VWD and how it affects the everyday lives of you and your family. It involves an online survey and an optional in-depth interview and bleeds diary. You will be reimbursed for your time.
Questions about MyABDR
Wondering about how to get started with MyABDR? Or how to contact MyABDR Support to troubleshoot any problems?
Visit the What is MyABDR page >
