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April 2026 Newsletter
World Haemophilia Day, Women Bleed Too survey, National Haemophilia, Steve on gene therapy for haemophilia, and more...
March 2026 National Haemophilia now available
This issue: VWD therapies update, raising awareness, personal stories, and more...
March 2026 Newsletter
Rare Disease Day, International Women's Day, Women bleed too survey, Looking after your ABDR Data, Simoni and Javonte's story, and...
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Personal stories
Michelle – Her journey to diagnosis
Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later...
VWD: Your voice matters – Sophie’s story
Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others...
Steve on gene therapy for haemophilia
Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life...
Simoni and Javonte – growing up with a rare bleeding disorder
Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia...