Items tagged 'Women & girls'

Women and girls with bleeding disorders

Suzanne O'Callaghan -
26 June 2024

Sessions on women and girls at the WFH 2024 World Congress had a strong message that it’s time for action on female-specific research, treatment and care.

Women: caregivers to patients to advocates

Lara Nicholson -
26 June 2024

This session discussed the work of women advocates to overcome the general and longstanding misunderstanding that women are only carriers and do not have bleeding disorders.

Growing up with Glanzmann thrombasthenia

Elizabeth -
19 March 2024

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth talks about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Living with Glanzmann thrombasthenia

Allison -
19 March 2024

Allison was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

Women and peer support

Lauren Green -
19 March 2024

How do you encourage women to take some time out to focus on their own needs? Lauren talks about peer support activities for women at Haemophilia Foundation Queensland.

International Women’s Day 2024

8 March 2024

Today we celebrate the women in the bleeding disorders community – whether they’re women with bleeding disorders or mums, partners, daughters, sisters, nurses, doctors, social workers or counsellors, physios, researchers, or carers. Thank you for being part of our community and advocating for us!

Living with type 1 VWD

Susie -
11 December 2023

Susie’s story Susie shared her personal story of living with type 1 VWD at the 21st Australian Conference on haemophilia,…

Pregnancy and childbirth

Stephen Matthews -
11 December 2023

STEPHEN MATTHEWS Stephen Matthews is Clinical Nurse Consultant Haemophilia at the Royal Prince Alfred Hospital, Sydney, NSW Pregnancy, childbirth and…

The challenges of living with VWD

Shauna -
11 December 2023

Shauna’s story Shauna shared her personal story of managing quality of life issues while living with Type 3 VWD at…

Women and girls with bleeding disorders

Suzanne O'Callaghan and Alex Klever -
11 December 2023

Plenary – Women and girls with bleeding disordersChair ~ Dr Meredith WigginsPersonal perspectives on the challenges and issues of living…

Haemophilia Foundation Australia

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Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Women & girls'

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