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Items tagged 'Treatment & care'

  • National Haemophilia Journal

Taking care of your ABDR data

  • Julia Ekert, Marina Goruppi, Linda Mason and Deirdre Tuck -
  • 26 June 2023

ABDR Data Managers Julia, Marina, Linda and Deirdre spoke to HFA about their role with Australian Bleeding Disorders Registry (ABDR)…

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  • National Haemophilia Journal

WFH 2023 Comprehensive Care Summit

  • Yu-hsuan Lin (Yoshi) -
  • 26 June 2023

YU-HSUAN LIN (YOSHI)  Yu-hsuan Lin (Yoshi) is Haemophilia Nurse Consultant, Haemophilia Treatment Network SA, at the Royal Adelaide Hospital, South…

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 20 March 2023

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia  I focused on new therapies, starting school and the national conference in National Haemophilia…

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  • National Haemophilia Journal

Haemophilia treatment survey

  • Suzanne O'Callaghan -
  • 20 March 2023

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What information does our community want about new haemophilia…

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  • National Haemophilia Journal

AHCDO update

  • Andrea Johannessen -
  • 12 December 2022

ANDREA JOHANNESSEN Dr Andrea Johannessen is AHCDO Executive Officer GENE THERAPY ROADMAP The Australian Haemophilia Centre Directors' Organisation (AHCDO) has…

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 12 December 2022

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia   New therapies It is exciting to see more new therapies for bleeding disorders…

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  • National Haemophilia Journal

New haemophilia therapies

  • 12 December 2022

It is an exciting time with more new haemophilia treatments likely to become available in Australia, but there have been…

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  • National Haemophilia Journal

Poppa Erl and Roman share a special bond

  • Naomi -
  • 12 December 2022

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

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  • National Haemophilia Journal

World Hepatitis Day 2022

  • 13 September 2022

World Hepatitis Day is marked globally on 28 July. This is part of a worldwide campaign to eliminate viral hepatitis…

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  • National Haemophilia Journal

AHCDO update – congenital fibrinogen disorders

  • Andrea Johannessen -
  • 13 September 2022

AHCDO John Lloyd Clinical Excellence Grant ANDREA JOHANNESSEN Dr Andrea Johannessen is AHCDO Executive Officer The Australian Haemophilia Centre Directors'…

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