Items tagged 'Treatment & care'

Mild haemophilia

Suzanne O'Callaghan and Natalie Karlovic -
11 December 2023

Plenary – Managing mild haemophilia Chair ~ Dr Heather TappPersonal perspective from a young adult and his dad ~ Louis and…

Von Willebrand disease

Suzanne O'Callaghan -
11 December 2023

SUZANNE O’CALLAGHAN Suzanne O’Callaghan is HFA Policy Research and Education Manager VWDChair ~ Dr Chee Wee TanPersonal story ~Adam Personal story…

New haemophilia therapies

Alex Klever and Natalie Karlovic -
11 December 2023

ALEX KLEVER Alex Klever is Clinical Nurse Consultant – Haemophilia at the Queensland Haemophilia Centre, Royal Brisbane & Women’s Hospital…

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

New haemophilia booklet

11 December 2023

The new HFA Haemophilia booklet is now available. The 2023 edition has been revised completely to take new haemophilia treatments…

Emicizumab in haemophilia A

Radha Ramanan -
12 September 2023

RADHA RAMANAN Dr Radha Ramanan is the current Australian Haemophilia Centre Directors’ Organisation (AHCDO) Research Fellow. Dr Radha Ramanan reports…

Mouth bleeds in bleeding disorders

Grainne Dunne -
12 September 2023

GRAINNE DUNNE Grainne Dunne is Clinical Nurse Consultant, Haemophilia, at Sydney Children’s Hospital Our mouth is a most wonderful and…

WFH Shared Decision-Making Tool

Suzanne O'Callaghan -
12 September 2023

SUZANNE O’CALLAGHAN Suzanne O’Callaghan is HFA Policy Research and Education Manager In these times of new therapies, how does the…

Accessing treatment – Leah’s story

19 July 2023

What does access to the latest evolution of haemophilia treatments mean for a family? Leah shares her experience about new…

WFH 2023 Comprehensive Care Summit

Yu-hsuan Lin (Yoshi) -
26 June 2023

YU-HSUAN LIN (YOSHI) Yu-hsuan Lin (Yoshi) is Haemophilia Nurse Consultant, Haemophilia Treatment Network SA, at the Royal Adelaide Hospital, South…

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Treatment & care'

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