Items tagged 'Treatment & care'

Jack’s latest travel adventure

17 October 2024

Boys, Personal stories, Travel, Treatment & care, Young people
adventure sport, haemophilia, travel, treatment, Youth

Jack shares his travel adventures in Canada and the USA - snowboarding and managing haemophilia on the road with new treatments.

Haemophilia gene therapy snapshot survey

Suzanne O'Callaghan -
11 September 2024

HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.

From the President

Gavin Finkelstein -
11 September 2024

Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.

ISTH 2024 Congress: novel therapies

Ashley Fletcher -
11 September 2024

Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.

MyABDR and recording your treatment

Suzanne O'Callaghan -
11 September 2024

With new haemophilia treatments, recording on MyABDR has some challenges. HTCs and users share their tips.

New developments in haemophilia nursing

Megan Walsh -
26 June 2024

The EAHAD Congress was a stimulating forum to discuss new issues in haemophilia nursing - eg, bleeds with new therapies, women and mild haemophilia.

New and emerging issues in physiotherapy

Abi Polus -
26 June 2024

With the new treatments I am seeing people with bleeding disorders in the haemophilia clinic and on the hospital ward who are having a different presentation of bleeding to what we had traditionally seen.

Women and girls with bleeding disorders

Suzanne O'Callaghan -
26 June 2024

Sessions on women and girls at the WFH 2024 World Congress had a strong message that it’s time for action on female-specific research, treatment and care.

Exploring haemophilia prophylaxis

Yuhsuan Lin (Yoshi) -
26 June 2024

One of the most memorable sessions at WFH 2024 World Congress focused on the optimal dosage of prophylaxis treatment for individuals with haemophilia

Body art – tattoos and piercings

Jaime Chase -
26 June 2024

At the Nurses’ Workshop at WFH 2024 World Congress, Scott gave a fascinating presentation about the patient experience of body art with severe haemophilia .

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Treatment & care'

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