Personal stories Archives - Page 8 of 12 - Haemophilia Foundation Australia

Perry and living with VWD

2 March 2022

Getting older, Personal stories, Von Willebrand disease

My name is Perry. I have von Willebrand disease type 2a. I'm in my 70s, and I didn't get diagnosed until I was in my late 50s. I live with the disease and I would like to talk about that.

Youth News – Getting the message out

14 March 2022

My name’s Adam. I am 17 years old and I have severe haemophilia A. Why do I raise awareness? To…

40 years of HIV – where to next?

14 March 2022

In 2021 it was 40 years since the first official report of HIV. Around the globe it was an…

Getting the message out

22 February 2022

Adam has severe haemophilia A. He explains why he is involved in raising awareness at his school and in his local community.

Growing up with von Willebrand disease

14 December 2021

Simoni tells her personal story of growing up with the challenges of type 3 (severe) VWD.

Growing up with von Willebrand disease

Simoni -
13 December 2021

Simoni’s story This is a transcript of Simoni’s presentation at the 20th Australian Conference on Haemophilia, VWD and Rare…

Living with von Willebrand disease

Perry -
13 December 2021

Perry’s story Perry spoke about his personal story of living with von Willebrand disease (VWD) at the 20th Australian…

Youth News – Dale’s story

Dale -
13 December 2021

Don’t let your bleeding disorder stop you My name’s Dale and I have severe haemophilia A. My approach to my…

Growing up with haemophilia

18 October 2021

Dale grew up with haemophilia A, but he never let it stop him from doing anything.

How changing treatments has changed Scott’s world

13 October 2021

Scott shares how changes to his haemophilia treatment have made it possible for him to do more.

Items tagged 'Personal stories'

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