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Items tagged 'Personal stories'

  • National Haemophilia Journal

VWD down the generations

  • Fiona -
  • 12 December 2022

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

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  • National Haemophilia Journal

Youth News – Haemophilia: the spice of life

  • Willem -
  • 12 December 2022

Willem spoke to HFA about working, exercising and being out and about in these days with new treatments.  My name’s…

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  • News & Stories

Becoming a youth leader

Chris speaks about being a youth leader with his local Haemophilia Foundation, camps, catch-ups and life with haemophilia these days.
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  • National Haemophilia Journal

Clearing hep C as a child – John’s story

  • 13 September 2022

*John is not his real name For most people who were exposed to hepatitis C through their treatment products, the…

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  • National Haemophilia Journal

Novel haemophilia therapies

  • Robyn Shoemark -
  • 13 September 2022

Living in the new world of novel haemophilia therapies ROBYN SHOEMARK Robyn Shoemark is Clinical Nurse Consultant Haemophilia/Haematology at the…

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  • National Haemophilia Journal

Turning liver health around – Jake’s story

  • 13 September 2022

Turning liver health around after hep C – Jake’s story* *Jake is not his real name ‘Now that my liver…

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  • National Haemophilia Journal

World Hepatitis Day 2022

  • 13 September 2022

World Hepatitis Day is marked globally on 28 July. This is part of a worldwide campaign to eliminate viral hepatitis…

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  • National Haemophilia Journal

Youth News – Becoming a youth leader

  • Chris -
  • 13 September 2022

Chris spoke to HFA about being a youth leader with his local Haemophilia Foundation, camps, catch-ups and life with haemophilia…

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  • News & Stories

Getting stronger

Gavin talks about growing up with haemophilia and what he has learned about developing his strength and resilience.
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  • National Haemophilia Journal

Youth News – Growing stronger

  • Gavin -
  • 14 June 2022

Gavin spoke to HFA about growing up with haemophilia and what he has learned about developing his strength and resilience….

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