Items tagged 'Personal stories'

Accessing treatment – Leah’s story

19 July 2023

What does access to the latest evolution of haemophilia treatments mean for a family? Leah shares her experience about new…

Haemophilia – all in the family

19 July 2023

Meet two sisters, Julia and Rebecca. Their father Len has haemophilia. Between the sisters they have four sons, all toddlers – and…

Youth News: A message to your younger self

29 June 2023

Bleeding disorders, Growing up with a bleeding disorder, Personal stories, Young people

We asked some of our community members with bleeding disorders what they would tell their younger self. They reflected on what was most important to them when they were young and had some thoughtful and encouraging messages from what they have learned as they became adults.

Jacqui & Mason

16 June 2023

When Jacqui’s baby boy was gingerly holding his leg at an odd angle she knew that something was wrong. With her husband, Todd, away for work she was left alone to take baby Mason to the doctor for what she thought would be a fairly routine appointment.

The changing world of new treatments

1 May 2023

What's changed in haemophilia treatments? Listen to the stories of people of all ages in the Australian haemophilia community as they described the differences with the new treatments and how it has affected their lifestyle, independence and quality of life.

Haemophilia – the spice of life part 2

Willem -
20 March 2023

Willem talked to HFA about being part of his local community, making friends and trying out new skills. My name’s…

Living life actively with VWD

20 March 2023

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

Being involved – a great way to meet people

16 January 2023

Willem chats about being part of his local community, making friends and trying out new skills.

Haemophilia – the spice of life

12 December 2022

Willem spoke to us about working, exercising and being out and about in these days with new treatments.

Poppa Erl and Roman share a special bond

Naomi -
12 December 2022

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Personal stories'

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