Items tagged 'Personal stories'

Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her child has VWD type…

Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it…

One of the main reasons women choose to have genetic testing for the altered gene for haemophilia is to find…

Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t…

Alan shares his story about how speaking with others about his bleeding disorder helped ease his transition into higher education …

You might not think to put “haemophilia” and “weightlifting” in the same sentence, but for Tim Demos this has been…

What if you are passionate about playing Australian Rules Football, but have severe haemophilia? How can you keep doing something…

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

Amanda (Mindi) Palm is an Australian community member and blogger who moved to Sweden for a few years. She explains…

Ben and Kylie have a son, Ryder aged 4 with severe haemophilia A. Being the father of a small boy with…

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