Personal stories Archives - Page 4 of 12 - Haemophilia Foundation Australia

Reach out and connect to your community! In our digital stories for World Haemophilia Day 2019, Australian community members share…

This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today….

“Lyn” (not her real name) is mother to several children with von Willebrand disorder. She was interviewed by Suzanne O’Callaghan,…

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

Advances in haemophilia treatment and care over the last few decades have meant that there has been overall increase in…

Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at…

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to…

An Australian bleeding disorders community member tells her personal story. I have lived my whole life surrounded by haemophilia. My…

Items tagged 'Personal stories'