Items tagged 'Personal stories'

Living with type 1 VWD

Susie -
11 December 2023

Susie’s story Susie shared her personal story of living with type 1 VWD at the 21st Australian Conference on haemophilia,…

The challenges of living with VWD

Shauna -
11 December 2023

Shauna’s story Shauna shared her personal story of managing quality of life issues while living with Type 3 VWD at…

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

Youth News – My amazing travel adventure

Jack -
12 September 2023

Jack talked to HFA about travelling overseas and managing his haemophilia for some amazing trips!

Finally cured of hep C – Alex’s story

*Alex is not his real name ‘I felt like I had won a million dollars.’ What is it like to…

Youth at the Conference

7 December 2023

Adam, Alan and Cassie talked to HFA about their experiences at the Melbourne Conference in August 2023. It was a great opportunity for young people with bleeding disorders to catch up with each other and hear the very latest information from the experts.

Youth News – My amazing travel adventure

20 September 2023

Personal stories, Travel, Young people

Jack talked to HFA about travelling overseas and managing his haemophilia for some amazing trips!

Family & Community Camps

20 July 2023

The importance of our camps for children and families cannot be underestimated. At these camps, children connect with others going…

David’s treatment story

20 July 2023

David is an Australian community member. He spoke with Suzanne O’Callaghan from HFA about his experience of treatment with one…

Paul’s treatment story

20 July 2023

Paul was diagnosed with hepatitis C as a teenager. After treatment with the new DAAs he has finally been cured….

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Personal stories'

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