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Items tagged 'Personal stories'

  • News & Stories

Youth taking on the future

Ben talks about the Blue Shirts youth leadership program, his experiences and hopes for the program.
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  • News & Stories

Catching up with youth

Declan and Bailey talk about catching up with other young people at a gaming bar and what made it fun.
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  • News & Stories

Paul talks about his career

Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base.
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  • News & Stories

Acquired haemophilia – Jenny’s story

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.
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  • News & Stories

Hopes for the Future

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.
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  • National Haemophilia Journal

Living with Glanzmann thrombasthenia

  • Allison -
  • 19 March 2024
Allison was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.
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  • News & Stories

Growing up with Glanzmann thrombasthenia 

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
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  • News & Stories

Living with Glanzmann thrombasthenia 

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder. 
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  • News & Stories

Finally cured of hep C – Alex’s story

‘I felt like I had won a million dollars.’ What is it like to be cured of hepatitis C after…

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  • News & Stories

Jake’s liver health journey

* Jake is not his real name ‘Now that my liver is working better, everything is better.’ Curing hepatitis C…

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Haemophilia Foundation Australia

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