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Items tagged 'Parents & families'

  • National Haemophilia Journal

Youth News – My brothers have haemophilia

  • Angelina -
  • 14 September 2020

What’s it like to be the sibling of someone with a bleeding disorder? Angelina shares her story of the highs,…

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  • National Haemophilia Journal

When life changed with inhibitors

  • 22 June 2020

Belinda and Paul are parents of Christopher, aged 7, who has haemophilia and inhibitors. They talked to HFA about the…

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  • National Haemophilia Journal

Normal child development

  • Nicola Hamilton and Alana Randall -
  • 11 March 2020

NICOLA HAMILTON AND ALANA RANDALL Nicola Hamilton and Alana Randall are Paediatric Physiotherapists, The Royal Children’s Hospital, Melbourne Every child…

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  • National Haemophilia Journal

Sharing our journey with VWD

  • Robyn Heal and Cara Gannon -
  • 11 March 2020

ROBYN HEAL AND CARA GANNON Robyn Heal and Cara Gannon have VWD Type 1 and are HFV Committee Members Robyn…

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  • National Haemophilia Journal

Quality of life and emotional wellbeing of children

  • Emma Prowse -
  • 18 September 2019

EMMA PROWSE Dr Emma Prowse is Clinical Psychologist at the Children’s Cancer and Haematology Service, John Hunter Children’s Hospital, Newcastle,…

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  • National Haemophilia Journal

Haemophilia school resources

  • Amy Finlayson -
  • 12 June 2019

AMY FINLAYSON Amy Finlayson is the Haemophilia Clinical Nurse at the Queensland Children’s Hospital, Brisbane Haemophilia, unlike other well-known conditions…

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  • National Haemophilia Journal

Playing for a successful HTC visit

  • Jaime Chase, Veronica Oakley -
  • 18 March 2019

Teaching and supporting children with haemophilia JAIME CHASE AND VERONICA OAKLEY    Jaime Chase is Haematology Clinical Nurse Specialist and…

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  • National Haemophilia Journal

Living like a Swede

  • Mindi Palm -
  • 5 December 2018

MINDI PALM Amanda (Mindi) Palm is a former Australian community member and blogger, now living in Sweden We’ve had three…

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  • National Haemophilia Journal

Telling others

  • 5 December 2018

How do you tell a new partner about your bleeding disorder? Or your daughter that she may have a bleeding…

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  • National Haemophilia Journal

Congress – a nursing perspective

  • 17 September 2018

Australian nurses at Congress Photo: Robyn Shoemark The WFH World Congress in Glasgow was attended by 11 specialist Haemophilia Nurses…

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