Items tagged 'HFA & Foundation news'

Unsure about genetic testing and factor level testing in haemophilia and how it works in women and girls? We have published a new education resource, Haemophilia testing in women and girls: a guide to answer these questions simply and clearly.

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia  As I write my update for National Haemophilia, I can’t help but think about…

Unsure about genetic testing and factor level testing in haemophilia and how it works in women and girls?   Haemophilia…

We're excited to announce that together with ACMI we're hosting a free mythbusting animation workshop during the 2023 Conference in August. Perfect for creative kids aged 10-16 years old, the workshop is an opportunity to meet new people, help bust myths about bleeding disorders and learn how to animate. The workshop will run from 12pm onwards on Saturday 25 August 2023.
It's Careers Week! Running 15-21 May 2023, this week we're sharing stories from our community and expert advice to help you follow your passion. Whether you're just starting to think about your career, ready for your first job, or looking to do something different, there's a lot to consider. And adding a bleeding disorder to the mix doesn't make things easier.
Today is World Haemophilia Day. Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and other inherited bleeding disorders. This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.
World Haemophilia Day is a month away.  Click here for more infomration and Light It Up Red locations 
www.haemophilia.org.au/WHD
The March 2023 National Haemophilia is now available to read on our website. Catch up on the latest information and personal stories from our community, including 'Haemophilia - what's possible?', tips for young people with a bleeding disorder, Rare Disease Day and more.
The WFH 2022 World Congress will take place in Montreal, Canada on 8-11 May 2022, both face-to-face and virtually.
Today is International Women’s Day! Help us celebrate the women in the bleeding disorders community – whether they’re women with bleeding disorders or mums, partners, daughters, sisters, nurses, doctors, social workers or counsellors, physios, researchers, or carers. Thank you for being part of our community and advocating for us.

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