Items tagged 'HFA & Foundation news'

Today researchers at Royal Prince Alfred Hospital in Sydney and their international collaborators announced a breakthrough in gene therapy for haemophilia B.

The Rt Hon Sir Ninian Stephen, HFA’s Patron for many years, died on the weekend, aged 94.

We are very pleased to announce that the new HFA folder Haemophilia - a guide for parents of a newly diagnosed child is now available.

From Tuesday 22 August 2017 if you want to use the REMEMBER ME function on the MyABDR app, you will need to set a 4-digit pin.

Today is World Hepatitis Day.

This year we celebrate World Hepatitis Day with the stories of people with haemophilia who have been cured of their hep C.

Complete the MyABDR user survey by Friday 30 June 2017. Tell us about your experience of MyABDR and changes you would like to see in the future