Items tagged 'HFA & Foundation news'

The WFH is seeking comment from the VWD community worldwide on the draft international VWD guidelines and recommendations.
The World Federation of Hemophilia has published a Medical News release on specific risks to people with bleeding disorders if they acquire COVID-19.
An update from HFA on COVID-19
An update on the latest information about coronavirus (COVID-19)
HFA staff are now working remotely during the current coronavirus crisis. 
 

2020 WFH WORLD CONGRESS The 2020 WFH World Congress will be held in in Kuala Lumpur, Malaysia from 14-17 June.  …

Rare Disease Day will be celebrated on 29 February 2020. Its aim is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
HFA has been asked about the safety of clotting factor treatments made from human blood plasma in the context of Coronavirus (COVID-19).
 
Lifeblood (formerly the Australian Red Cross Blood Service) has confirmed that donor screening procedures in Australia to prevent individuals who show disease symptoms typical of a coronavirus infection, including COVID-19, are routinely in place, and will continue to be reviewed. There is no current evidence suggesting coronavirus is transmissible by blood transfusion and other similar respiratory viruses are not known to be transmitted by blood. Virus detection in the blood has only been detected in a relatively small proportion of unwell patients who would not be eligible to donate blood. Further, dry heat treatment, solvent detergent and other steps used in the fractionation process inactivate and remove viruses.
 
In relation to ongoing supply of treatment products in Australia, the National Blood Authority has contracts with suppliers in place to ensure adequate supplies of local and imported clotting factors, including national reserves and advises there is no reason to expect any threats to supply at this time.
 
HFA will continue to monitor the situation and provide updates.
 
For up to date information about the Coronavirus situation see
https://www.health.gov.au/health-topics/novel-coronavirus-2019-ncov
Please let HFA know if we can assist bleeding disorder community members affected by the bushfires.
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