Items tagged 'Growing up with a bleeding disorder'

Parenting a teenager with a rare bleeding disorder

Elizabeth -
11 September 2024

Growing up with a bleeding disorder, Inherited platelet function disorders, Parents & families, Personal stories, Rare bleeding disorders
friends, girls, Glanzmann thrombasthenia, parents, school

Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.

Heavy menstrual bleeding in teenagers

Jaime Chase -
11 September 2024

When and how to seek help for adolescent girls with bleeding disorders when they have heavy periods.

Hopes for the Future

4 April 2024

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

Shauna – sharing her life experience living with a bleeding disorder

19 July 2023

Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t…

Chris shares his inspiring story of following his passion

19 July 2023

What if you are passionate about playing Australian Rules Football, but have severe haemophilia? How can you keep doing something…

Youth News: A message to your younger self

29 June 2023

Bleeding disorders, Growing up with a bleeding disorder, Personal stories, Young people

We asked some of our community members with bleeding disorders what they would tell their younger self. They reflected on what was most important to them when they were young and had some thoughtful and encouraging messages from what they have learned as they became adults.

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.