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Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.

Glanzmann thrombasthenia is a very rare hereditary platelet function disorder that affects the way that platelets work in the body.

The Australian Haemophilia Centre Directors’ Organisation (AHCDO) has a new committee and had a successful education day discussing women, VWD and gene therapy.

What events are coming up on the bleeding disorders calendar?

The team has changed recently at HFA. Natashia Coco has taken on the role of Executive Director (Acting) and we welcome Pauline Hill as our Digital Communications Manager.

The 2024 funding round for the Damon Courtenay Memorial Endowment Fund (DCMEF) is now open.

As a FIFO, what do you need to think about to manage your bleeding disorder when you are onsite?

Another exciting year ahead and the HFA staff have hit the ground running in 2024.

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth talks about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Allison was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

What mental health support services are available and how do you access them?

The PROBE Australia Study is how HFA is building evidence about the needs of men and women affected by haemophilia in Australia. Here’s how you can help.

How do you encourage women to take some time out to focus on their own needs? Lauren talks about peer support activities for women at Haemophilia Foundation Queensland.

Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and other inherited bleeding disorders. Find out how it will be celebrated in Australia.

Ben talks to HFA about his experiences and hopes for the Blue Shirts youth leadership program.

We are building evidence about the needs of men and women affected by haemophilia in Australia.