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Items tagged 'Articles'

  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 19 March 2024
Another exciting year ahead and the HFA staff have hit the ground running in 2024.
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  • National Haemophilia Journal

Growing up with Glanzmann thrombasthenia

  • Elizabeth -
  • 19 March 2024
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth talks about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
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  • National Haemophilia Journal

HFA has a new website

  • 19 March 2024
Over the past year the HFA team, together with our website developer, Heartburst, have been designing and building a new website for haemophilia.org.au. Check it out - and let us know if you find anything broken!
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  • National Haemophilia Journal

Living with Glanzmann thrombasthenia

  • Allison -
  • 19 March 2024
Allison was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.
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  • National Haemophilia Journal

Mental health and support

  • Nicoletta Crollini -
  • 19 March 2024
What mental health support services are available and how do you access them?
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  • National Haemophilia Journal

Rare Disease Day 2024

  • 19 March 2024
In 2024 Rare Disease Day is celebrated worldwide on 29 February to raise awareness and generate change for people with rare diseases. It is an opportunity to share personal stories and acknowledge the challenges for our community members who live with a rare bleeding disorder.
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  • National Haemophilia Journal

Why is PROBE important?

  • 19 March 2024
The PROBE Australia Study is how HFA is building evidence about the needs of men and women affected by haemophilia in Australia. Here's how you can help.
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  • National Haemophilia Journal

Women and peer support

  • Lauren Green -
  • 19 March 2024
How do you encourage women to take some time out to focus on their own needs? Lauren talks about peer support activities for women at Haemophilia Foundation Queensland.
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  • National Haemophilia Journal

World Haemophilia Day 2024

  • 19 March 2024
Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and other inherited bleeding disorders. Find out how it will be celebrated in Australia.
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  • National Haemophilia Journal

Youth taking on the future

  • Ben -
  • 19 March 2024
Ben talks to HFA about his experiences and hopes for the Blue Shirts youth leadership program.
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Haemophilia Foundation Australia

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Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

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