Items tagged 'Families'

Parenting a teenager with a rare bleeding disorder

Elizabeth -
11 September 2024

Growing up with a bleeding disorder, Inherited platelet function disorders, Parents & families, Personal stories, Rare bleeding disorders
friends, girls, Glanzmann thrombasthenia, parents, school

Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.

Mental health and support

Nicoletta Crollini -
19 March 2024

What mental health support services are available and how do you access them?

Why is PROBE important?

19 March 2024

The PROBE Australia Study is how HFA is building evidence about the needs of men and women affected by haemophilia in Australia. Here's how you can help.

Haemophilia: men and babies

Kara Cordiner, Penny McCarthy and Megan Walsh -
12 September 2023

KARA CORDINER, PENNY MCCARTHY AND MEGAN WALSH Kara Cordiner, Penny McCarthy and Megan Walsh are Clinical Nurse Consultants at the…

Family & Community Camps

20 July 2023

The importance of our camps for children and families cannot be underestimated. At these camps, children connect with others going…

Overcoming Challenges

19 July 2023

To celebrate Bleeding Disorders Awareness Week HFA launched this digital movie to showcase Overcoming Challenges of a Bleeding Disorder.

VWD – all in the family

19 July 2023

“Lyn” (not her real name) is mother to several children with von Willebrand disorder. She was interviewed by Suzanne O’Callaghan,…

VWD – Down the generations

19 July 2023

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

Susie – living with type 1 von Willebrand disorder

19 July 2023

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

Poppa and Roman share a special bond

19 July 2023

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Families'

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