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Items tagged 'research studies'

  • National Haemophilia Journal

AHCDO research

  • Caitlin Rice -
  • 26 June 2024
Caitlin Rice is undertaking research projects on VWD type 3 and acquired haemophilia A for AHCDO and will use ABDR data for these projects.
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  • National Haemophilia Journal

Have you done the PROBE survey yet?

  • 26 June 2024
Participate in the PROBE Australia Study today and contribute to HFA's real-world evidence on haemophilia!
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  • National Haemophilia Journal

Research studies – why participate?

  • 26 June 2024
With new treatments being assessed by government in Australia, you will be invited to participate in a few research studies. Why participate?
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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 26 June 2024
I was privileged to attend the 2024 WFH World Congress. It was exciting to hear updates on what’s happening worldwide with women, clinical trials, gene therapy.
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  • National Haemophilia Journal

PROBE Australia Study

  • 11 December 2023

Have you done the PROBE survey yet? The 2023 round of the PROBE Australia Study has now commenced! You can…

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  • National Haemophilia Journal

What have we learned from PROBE?

  • Suzanne O'Callaghan -
  • 14 September 2020

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager If you saw the PROBE data about ageing and…

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  • National Haemophilia Journal

Future proofing

  • Preetha Jayaram -
  • 12 June 2019

An important aspect of the health and wellbeing of bleeding disorders community members?  PREETHA JAYARAM Preetha Jayaram is the Haemophilia…

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  • National Haemophilia Journal

PROBE for real-world evidence

  • 12 June 2019

The real-world PROBE study is now available! WHY IS THE PROBE STUDY IMPORTANT? What is the impact of haemophilia and…

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  • National Haemophilia Journal

Haemophilia Foundation Australia Research Fund

  • 18 March 2019

2019-2020 Funding Round Open! $20,000 is available for medical, scientific or social research to improve outcomes for people with haemophilia,…

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  • National Haemophilia Journal

New staff – Ageing Project

  • 18 March 2019

Preetha Jayaram joined the HFA team in February 2019 to start work on HFA’s new Ageing project. HFA has received…

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