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Items tagged 'haemophilia'

  • National Haemophilia Journal

Women and girls with haemophilia

  • Robyn Shoemark -
  • 13 September 2022

ROBYN SHOEMARK Robyn Shoemark is Clinical Nurse Consultant Haemophilia/Haematology at the Kids Factor Zone, The Children’s Hospital at Westmead, Sydney,…

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  • National Haemophilia Journal

New HFA education resource

  • 14 June 2022

Haemophilia Foundation Australia has published a new education resource, Haemophilia testing in women and girls: your questions answered. It’s a…

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  • National Haemophilia Journal

40 years of HIV – where to next?

  • 14 March 2022

In 2021 it was 40 years since the first official report of HIV.   Around the globe it was an…

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  • National Haemophilia Journal

Managing bleeds under new treatments

  • Suzanne O'Callaghan -
  • 14 March 2022

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager With new haemophilia treatments for adults and children available…

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  • National Haemophilia Journal

Rare Disease Day 2022

  • 14 March 2022

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experiences of people with rare diseases. The…

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  • National Haemophilia Journal

Youth News – Getting the message out

  • 14 March 2022

My name’s Adam. I am 17 years old and I have severe haemophilia A. Why do I raise awareness? To…

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  • National Haemophilia Journal

Exercise and resistance training

  • Johanna Newsom -
  • 13 December 2021

JOHANNA NEWSOM Johanna Newsom is the haemophilia physiotherapist at The Children’s Hospital at Westmead, Sydney NSW Getting stronger safely  …

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  • National Haemophilia Journal

Pain and haemophilia

  • Nicola Hamilton -
  • 13 December 2021

NICOLA HAMILTON Nicola Hamilton is the haemophilia physiotherapist at the Royal Children’s Hospital, Melbourne Plenary 3 – Pain   Chair…

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  • National Haemophilia Journal

The changing treatment experience

  • Sue Webzell -
  • 13 December 2021

SUE WEBZELL Sue Webzell is the Haemophilia Clinical Nurse Specialist at Hollywood Private Hospital, Perth, WA Plenary 1 – The…

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  • National Haemophilia Journal

2021 Conference

  • 13 December 2021

The 20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders was held 8-9 October 2021. The event was a…

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