Items tagged 'haemophilia'

Jack’s latest travel adventure

17 October 2024

Boys, Personal stories, Travel, Treatment & care, Young people
adventure sport, haemophilia, travel, treatment, Youth

Jack shares his travel adventures in Canada and the USA - snowboarding and managing haemophilia on the road with new treatments.

Haemophilia gene therapy snapshot survey

Suzanne O'Callaghan -
11 September 2024

HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.

From the President

Gavin Finkelstein -
11 September 2024

Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.

Haemophilia inheritance video

11 September 2024

Boys, Haemophilia, Inheritance
haemophilia, inheritance, males, Youth

HFA's short video for teenage males answers the question, will males with haemophilia pass it on to their children - and how are genes involved?

ISTH 2024 Congress: novel therapies

Ashley Fletcher -
11 September 2024

Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.

Jack’s latest travel adventures

Jack -
11 September 2024

Boys, Haemophilia, New treatments, Personal stories, Travel, Young people
adventure sport, haemophilia, travel, Youth

Jack talks about his travel adventures in Canada and the USA, snowboarding and managing haemophilia on the road with new treatments.

New developments in haemophilia nursing

Megan Walsh -
26 June 2024

The EAHAD Congress was a stimulating forum to discuss new issues in haemophilia nursing - eg, bleeds with new therapies, women and mild haemophilia.

New and emerging issues in physiotherapy

Abi Polus -
26 June 2024

With the new treatments I am seeing people with bleeding disorders in the haemophilia clinic and on the hospital ward who are having a different presentation of bleeding to what we had traditionally seen.

Exploring haemophilia prophylaxis

Yuhsuan Lin (Yoshi) -
26 June 2024

One of the most memorable sessions at WFH 2024 World Congress focused on the optimal dosage of prophylaxis treatment for individuals with haemophilia

Have you done the PROBE survey yet?

26 June 2024

Participate in the PROBE Australia Study today and contribute to HFA's real-world evidence on haemophilia!

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'haemophilia'

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