Growing up with a bleeding disorder

Hopes for the Future

4 April 2024

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

Shauna – sharing her life experience living with a bleeding disorder

19 July 2023

Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t…

Chris shares his inspiring story of following his passion

19 July 2023

What if you are passionate about playing Australian Rules Football, but have severe haemophilia? How can you keep doing something…

Youth News: A message to your younger self

29 June 2023

Bleeding disorders, Growing up with a bleeding disorder, Personal stories, Young people

We asked some of our community members with bleeding disorders what they would tell their younger self. They reflected on what was most important to them when they were young and had some thoughtful and encouraging messages from what they have learned as they became adults.

Hopes for the Future

Shauna – sharing her life experience living with a bleeding disorder

Chris shares his inspiring story of following his passion

Youth News: A message to your younger self

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